LITTLE Yuto Rice’s family treasure every second with him
For the adorable two-year-old has a critical heart condition which means he is unlikely to survive past his teens.
Yuto has spent the last couple of years in and out of hospital as doctors tried to discover what was causing his breathlessness. They finally diagnosed him with restrictive cardiomyothopy, which means he is at risk of heart failure.
As Yuto’s body is too weak to undergo a heart transplant, his devastated parents – Daz and Maki Rice – have come to live with the tragic reality that every day they spend with him could be his last.
His father, Daz Rice, who runs Dazamakiz Music Shop on North Drive in Cleveleys, said: “He’s a little flame in our hearts. We just want to try to keep him as bright as possible for as long as possible. It’s inevitable he’s going to die from this. It could happen in two days, two weeks or years.
“He gets very breathless. He can’t walk, he can’t find the breath. He’s very restricted in any movement. The doctors can’t see him going past his teenage years so everyday is a bonus to us.”
The condition is said to be hereditary but Yuto’s relatives – including brothers Neo, 10, and Mario, six – have been tested and the results came back clear.
Yuto takes daily medication to try and stabilise his condition and give him the best quality of life he can have.
And now, after hearing about the little boy’s situation, his local councillor, Coun Andrea Kay, has decided to organise a massive fundraising event to give the tot a holiday of a lifetime and build a room downstairs in their house to accommodate Yuto’s needs.
Coun Kay is planning to hold the Yuto Fest at the Marine Hall in Fleetwood on Saturday July 9. Local bands are being invited to play during the day and wristbands for the event will be sold at £5.
Coun Kay said: “I was devastated when the family told me. Daz always helps me with any youth projects or charity events so I thought it was time we helped him and his lovely family.
“It’ll be a great day where the community can join in to make a difference.
“The Blue Pig Orchestra and the Jets are going to play, if any other bands would like to get involved they can send me a disc of their music.”
Coun Kay will also set up an account at the Royal Bank of Scotland called the Yuto Rice Appeal where people can make donations.
Mr Rice, of Barnes Drive, Cleveleys, added: “We’d like to thank everyone who is getting involved with this and praying for Yuto.”
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