A brave eight-year-old boy who spent the first year of his life battling to stay alive is continuing to defy the odds.
The moment little Deakon Beavers was born, by emergency Cesarian section, doctors had to resuscitate him and 12 days later he was rushed to Manchester Children’s Hospital for a blood transfusion.
He was diagnosed with HLH – a rare syndrome which causes the body to attack itself – as well as leukaemia.
His immune system was failing and he was put on chemotherapy at just 16 days old until he was six weeks old.
Twice in his first year doctors told his parents Karen and Phillip there was nothing more that could be done.’
Yet today, the brave youngster is enjoying school and playing with his younger siblings Lyla, five, and Logan, two.
Reflecting on their traumas, Karen said she was told by doctors there was nothing they could do except make him comfortable when Deakon was just six-weeks-old.
Karen, 33, said: “I was trying to be strong but I couldn’t stop the tears from flowing.
“We were just waiting, and it was excruciating.”
Deakon’s doctor took advice from specialists across the globe about what else they could do, and told Karen and Phillip there was a slim chance a bone marrow transplant could make a difference.
“They said he had a five per cent chance of getting through it,” Karen added.
“But we took the chance. At that point we found out he had three types of leukaemia which was attacking his skin, bone marrow and blood.”
Deakon had other health conditions including JXG which causes lesions on the skin, making him one of the rarest children on earth.
Deakon was put on the bone marrow transplant register, and had to wait three months for a transplant, during which time he was sill having chemotherapy.
Karen, of Coniston Avenue, Thornton, said: “I remember thinking that in a week’s time he might be dead. He was so poorly.”
The transplant was a success, but two days later Deakon took a turn for the worse.
Karen said: “I remember watching as they put an oxygen mask on his face, and it just filled with blood.
“He was taken on to the intensive care ward, and the doctors told us we had 24 hours to know if he would live or die.”
Thankfully Deakon fought his devastating conditions and was soon strong enough to go home. Now the amazing youngster is eight years old and enjoying being a pupil at Hambleton Primary Academy.
Karen added: “It’s been a trial for us, and we still don’t know what to expect in the long term, but for now Deakon is doing great. Looking back now I can’t believe what we have been through.”