Tributes have been paid to a seven-year-old boy whose “smile melted the hearts of everyone who met him.”
Tristan Hall had defied medical expectations, after being born with the rare genetic disorder, Edwards’ Syndrome.
Doctors predicted that due to the condition – which affects the major system of the body, including heart and digestive tract and causes delayed growth and development – he might not survive past his first birthday.
Only five per cent of babies with the condition live past the age of one.
But brave Tristan, of South Shore, kept reaching big milestones – such as getting his first tooth, using a standing frame and celebrating his seventh birthday.
Sadly, in August, his devoted mum Barbara – who he relied on for 24/7 care – was given the devastating news his kidneys had started to fail and there was nothing doctors could do. A transplant was not an option due to his medical problems.
It was the sad news Barbara and Tristan’s sister Linda and brother Wayne, had known they would one day have to face, and they kept on making the most of their time together – as they had done throughout his short life.
Tristan died on November 17, at Brian House Children’s Hospice peacefully, in his mum’s arms.
Barbara said: “It could not have been any more perfect. It was so peaceful.
“He was in my arms and he just looked at me and fell asleep.
“The team at Brian House was wonderful. I was able to visit Tristan whenever I wanted.
“I’m so glad he was there, because the care they gave was amazing.”
At Tristan’s funeral, which took place on Monday, at Carleton Crematorium, Father Peter Ennion talked about how much of an impact the little boy had on those around him.
He said: “Tristan loved life. He had a happy life.
“All life, no matter how fragile, or brief, changes the world forever. And Tristan certainly did that.”
His legacy will live on, as he inspired Barbara to set up Tristan’s Lighthouse, based on Lytham Road, Blackpool – a multi-sensory room to help other children and adults, especially those with special needs.
She said: “I am determined to carry on with the lighthouse in his memory. It was because of him I did it.
“When I think about what it gives and is going to give to other children and people with special needs, that makes me smile every time. It gives me comfort.
“He was the one who inspired me.
“He never wanted anything, apart from attention and love – which of course, he got.
“His smile melted the hearts of everyone who met him.
“We really tried to make the most of our time together – he went everywhere on holiday and he loved it.
“He showed us what was really important in life, he put things into perspective – the little things in life were just not worth worrying about.”
Among the songs played at Tristan’s funeral was Under The Sea, from the Disney film The Little Mermaid – one of his favourites.
Barbara said: “That was his song with Linda, they used to put it on and he loved it.
“I’m going to miss him so much, I will be lost really.
“But I know he had a full life, and he loved it to the end.”
After the service, family and friends gathered at Tristan’s Lighthouse, to share memories and celebrate Tristan’s life, as well as releasing balloons containing special, personal messages.
• A Christmas party is planned to take place at Tristan’s Lighthouse, Lytham Road, South Shore, on December 18, 5 until 7pm. All local families are welcome to attend.