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Brave Freya to set own walking record

Freya Butterfield, who has myotonic dystrophy, with her mum Joanne McCabe
Freya Butterfield, who has myotonic dystrophy, with her mum Joanne McCabe
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A Blackpool girl with a life-limiting muscle disorder will defy all odds to set her own personal walking record.

Freya Butterfield, five, has myotonic dystrophy, a type of muscular dystrophy that causes progressive muscle wasting.

She will walk next month from North to Central Pier - 0.6 miles - to raise money in the fight against the disorder.

It will be the furthest the Highfurlong pupil has ever walked.

Her mum Joanne McCabe, 32, who is also Freya’s carer, said: “She has been slower with her walking than the rest of the kids. She only started walking half a year ago and she still can’t run.

“It’s quite a walk for someone in her condition.”

Her dad Dan Butterfield, 30, said: “When Freya walked for the first time it was very emotional. We were told that she might never be able to walk.

“Freya always pushed through.”

A fundraiser has been set up in Freya’s name at www.justgiving.com/fundraising/followfreyasfootsteps. Find out more at www.congenitalmyotonicdystrophy.org.