Boost for muscle wastage patients

Dawn Fensome with her son Harrison, 10.
Dawn Fensome with her son Harrison, 10.
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A FYLDE coast mum has welcomed news the area is set to get extra help for those with muscle-wasting conditions.

Dawn Fensome, of Bispham, whose 11-year-old son Harrison, suffers from Duchenne muscular dystrophy, has found something of a lack of support and help for families over the years.

The Muscular Dystrophy Campaign says many patients across the country, who suffer from difficulties associated with muscular dystrophy and related conditions, are not receiving potentially life-saving regular check-ups.

It claims there is a “postcode lottery” of available care and support for patients.

Nic Bungay, director of campaigns, care and information, said Lancashire was one of the areas where there had been a black-hole.

But he said: “The Muscular Dystrophy Campaign believes plans are in place to recruit additional specialists for the area. We understand people may be able to access this as early as May, which we are really pleased about.

“There has been a bit of a black hole for things like on-going physio, access to hydrotherapy.

“But if the NHS provides these specialist services, they can reduce costs by reducing emergency admissions and keeping people out of hospital.”

Dawn said: “I had to keeping pushing to get Harrison diagnosed and had to fight for everything.

“He did not have a specific physio, there was no continuity. Because as a mother I had carried the gene which caused the condition, I felt a lot of guilt it and became very depressed.

“There was no real support for families. It’s felt like fighting to get everything we need all the time, but this is fantastic news.

“To have a specialist and have that support is a great idea.”

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