DCSIMG

Finley’s Jam Jar power

Finley Jackson shows off his jam jar with Brian House nurse Hayley Short

Finley Jackson shows off his jam jar with Brian House nurse Hayley Short

Little Finley Jackson knows more than most the important work being done at Brian House children’s hospice.

And that’s why as soon as The Gazette launched its Hospice Heroes appeal and asked children to join its Jam Jar Army, Finley started filling up his jar.

Now full, it has been presented to The Gazette.

Finley’s proud dad, Stephen, said: “Finley’s jam jar was really down to my mum and grandma.

“I am always telling them how much help Brian House is for Finley as well as for me and his mum. We wouldn’t be able to cope without it.”

Finley, three, suffers from Door Syndrome – a rare genetic disorder which affects around 50 people in the world.

It causes him to have uncontrollable seizures, which means the brave youngster needs care 24 hours a day, seven days a week.

It also means that Finley hasn’t developed at the same rate of other children he cannot sit up unaided or learnt to talk.

Stephen, 21 of Poulton, said: “On a good week, Finley will have four or five seizures. It’s really affected his life so far, and he’s in hospital 
regularly.

“He goes to Brian House once a week, and we’re given two overnight stays a month to give us a bit of a break.

“We’re so grateful to the staff there. Without them we don’t know what we would have done – we wouldn’t have been able to cope. We are on alert 24 hours a day. ”

The contents of Finley’s jam jar will be added to our Hospice Heroes funds, which are helping to pay for a massive refurbishment at Trinity Hospice and Brian House on Low Moor Road, Bispham.

Stephen said both he and Finley’s mum, Maddison McCluskey, 19, of Thornton, were extremely proud of their son’s efforts to contribute.

He added: “It’s great that we’re able to chip in and do our bit to help out.”

We need to raise £200,000, which will help create single rooms on Trinity’s inpatient unit and update the hospice’s fixtures and fitting for the first time in its 28-year history.

At Brian House the bedrooms are being made brighter and safer, the living area is being extended and the kitchen more suitable for older children to use.

Our money is being boosted by a £280,000 grant from the Department of Health.

If you want to join our Jam Jar Army, simply find an empty jam jar, fill it up with loose change and bring it to us at The Gazette on Avroe Crescent, Squires Gate.

Or if you are holding an event for the Hospice Heroes appeal why not get in touch with The Gazette’s Health reporter Rebecca Draper on (01253) 361728.

 

Comments

 
 

Back to the top of the page