DCSIMG

£15k vest hope for toddler

Remi Masterson, of Rydal Avenue in Blackpool, with aunt Jolene Long.

Remi Masterson, of Rydal Avenue in Blackpool, with aunt Jolene Long.

  • by Elizabeth Broughton
 

WITH her cheeky smile and bubbly personality, little Remi Masterson looks just like any other toddler.

But the 20-month-old is forced to stop playing and undergo several sessions of therapy every day in a bid to break up the mucus clogging her lungs.

The tot, from central Blackpool, has cystic fibrosis - a life-threatening and limiting condition which means her family have no idea how long their “absolute joy” will be in their lives.

As it stands, just half of sufferers live past their 41st birthday.

And now Remi’s grandma Tracey Barber and auntie Jolene Long have launched the Remi’s Breathe Easy appeal in a bid to raise £15,000 to buy a smart vest which will provide Remi with the vital therapy she needs.

Jolene said: “Remi was diagnosed at five weeks old and it’s quite a rare disorder.

“The condition involves daily therapy to break up mucus which floods the lungs and she will need medication four times a day for the rest of her life.

“But Remi is such a little darling and she’s so bright.”

The toddler lives with her grandma, Mrs Barber, on Rydal Avenue, along with four of her cousins - including 12-year-old Lejon, who suffers from cerebral palsy.

And Mrs Barber said: “It’s quite a hectic household but I’m really lucky because the other children are really good.

“And Remi is an absolute joy.”

The family want to buy Remi a smart vest, which will give her “more effective” therapy and, they hope, a “better chance” of avoiding stays in hospital.

It costs around £15,000 and a fundraising night is taking place at central Working Men’s Club, Kent Road, at 6pm on Saturday, April 13.

For tickets to the April event contact Jolene on 07917452005 or e-mail remisappeal@gmail.com

 

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